Kate Warren

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Excerpt

Another day, another procedure

9/22/2012

8 Comments

 
This will be a brief post in part because my internet time is limited and in part because I'm exhausted.  The danger is past.  Ben is more himself which is great, except for the not being able to understand why we can't go home.  If you've ever tried to explain to a hungry boy with autism that he can't eat until after a scan in the morning, you know how my last hour has gone. 

Looks like we'll be in Rochester for several more days.  We're still in PICU but may move to the general ward tomorrow.  The catheter came out this afternoon.  After asking to use the potty for so long it was surprising that Ben wouldn't go when we finally got him there.  He wouldn't use the bottle they had for the purpose.  Finally I put extra disposable pants on him and told him he could just go in them, hoping he would.  I'm happy to report that he had an accident.  Never thought I'd say or type those words.  We were starting to worry, but we know he'll be ok as far as that goes.

Tomorrow will be eventful.  Hoping his esophogram is early in the morning so that he can eat.  The chest tube will come out tomorrow unless the xrays show something they haven't been showing.

That's all I can think of other than to mention that hospital gift shop and cafeteria prices are unreal (not in a good way), and that if I had it to do over again, I would have asked my husband to send pajamas.

Kate

P.S.  I'm remembering to eat and brush my teeth and all of those things.  Thanks so much for your concern and comments.  I appreciate it, as does my family.
8 Comments
Cara Bristol link
9/23/2012 01:14:54 am

So sorry to hear about your son's health problems. One of the worst things to deal with. Sending positive thoughts for a speedy recovery.

Reply
Kate Warren
9/24/2012 08:54:53 am

Thank you Cara. I only wish he could recover, but the whole reason for this is that he's diabetic. I haven't heard type 1 or 2 but type 1 is the most likely, and it's a lifelong thing.

Reply
sue link
9/23/2012 03:46:53 am

sounds like he's improving. yes the accident line is funny in its own way. I can relate but it was with my dad that we had those issues. You take care and hope he improves every day and can enjoy the ride home

Reply
Kate Warren
9/24/2012 08:56:00 am

Thanks, Sue. Don't know yet how long we'll be here. Normally it would be about three more days, but Ben's a special case.

Reply
Donna Cummings link
9/23/2012 02:25:19 pm

Kate, I didn't realize you've been going through all of this -- I'm glad things have improved. I am definitely sending all kinds of good wishes and good vibes your way. *hugs*

Reply
Kate Warren
9/24/2012 08:56:42 am

Thank you, Donna. Much appreciated. *hug back*

Reply
Veronica Scott link
9/23/2012 03:27:53 pm

Hugs to you and your son, glad to hear things are improving! My autistic grandson had a bout in the hospital as a two year old and it was a total nightmare (turned out ok), so I can very much relate. Wish I could come help, I remember our experience so strongly. Best wishes!

Reply
Kate Warren
9/24/2012 08:57:44 am

Thanks, Veronica. Autism isn't for wimps, that's for sure. But then again neither is diabetes.

Reply



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