This will be a brief post in part because my internet time is limited and in part because I'm exhausted. The danger is past. Ben is more himself which is great, except for the not being able to understand why we can't go home. If you've ever tried to explain to a hungry boy with autism that he can't eat until after a scan in the morning, you know how my last hour has gone.
Looks like we'll be in Rochester for several more days. We're still in PICU but may move to the general ward tomorrow. The catheter came out this afternoon. After asking to use the potty for so long it was surprising that Ben wouldn't go when we finally got him there. He wouldn't use the bottle they had for the purpose. Finally I put extra disposable pants on him and told him he could just go in them, hoping he would. I'm happy to report that he had an accident. Never thought I'd say or type those words. We were starting to worry, but we know he'll be ok as far as that goes.
Tomorrow will be eventful. Hoping his esophogram is early in the morning so that he can eat. The chest tube will come out tomorrow unless the xrays show something they haven't been showing.
That's all I can think of other than to mention that hospital gift shop and cafeteria prices are unreal (not in a good way), and that if I had it to do over again, I would have asked my husband to send pajamas.
Kate
P.S. I'm remembering to eat and brush my teeth and all of those things. Thanks so much for your concern and comments. I appreciate it, as does my family.
Looks like we'll be in Rochester for several more days. We're still in PICU but may move to the general ward tomorrow. The catheter came out this afternoon. After asking to use the potty for so long it was surprising that Ben wouldn't go when we finally got him there. He wouldn't use the bottle they had for the purpose. Finally I put extra disposable pants on him and told him he could just go in them, hoping he would. I'm happy to report that he had an accident. Never thought I'd say or type those words. We were starting to worry, but we know he'll be ok as far as that goes.
Tomorrow will be eventful. Hoping his esophogram is early in the morning so that he can eat. The chest tube will come out tomorrow unless the xrays show something they haven't been showing.
That's all I can think of other than to mention that hospital gift shop and cafeteria prices are unreal (not in a good way), and that if I had it to do over again, I would have asked my husband to send pajamas.
Kate
P.S. I'm remembering to eat and brush my teeth and all of those things. Thanks so much for your concern and comments. I appreciate it, as does my family.
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